We got some more great news today...Alex is also free of Fanconi Anemia! So, now we have TWO healthy and one waiting for healing to come from his baby sister! Although the road ahead is still scary and long, we can see the light waiting at the end of it!!!
We spent another long few days at Children's having all kinds of tests done on Max - kidney function, heart, CT scans to check for any signs of infection and all kinds of blood work. Ellee had additional blood work done today and last Thursday along with a full physical today to be sure that she is ready for all of this too. So far everything looks great with both of them and we are gearing up to begin the process for the transplant. As of today, they are tentatively thinking we may be admitted by the end of next week. They are still waiting on some final diagnosis testing for Max to determine exactly his course of treatment, etc. but, then we should be ready to go.
We thank you all so much for your continued thoughts and prayers, food, gifts, cards, etc....for donating blood in Max's honor, for donating toys to Child Life, etc. Everything has been so touching and has made this journey a little easier along the way. You have also brought many smiles to Max's face, as well as Alex and Ellee's.
We are so very blessed...despite the difficulty of our journey currently, we feel so lucky to have so much. Three beautiful children, fabulous families, an amazing supportive community, the best doctors and nurses you can find...it just goes on and on. Please continue your prayers for all of us, they really are working.
Love,
Kristi (and Matt, Max, Alex and Ellee)
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Great news! Love to you all, Jen Hurtubise
ReplyDeleteSo glad to hear this news - prayers are answered! We will keep praying for Maxer & family throughout this long journey. We love you guys so much & Willie REALLY misses his Maxer time. Hang tough, buddy & we are sending lots of Hugs & Kisses!
ReplyDeleteWe are so glad to hear the good news. Hopefully your long journey will be full of good news all the way. Please remember we are standing by your side and are always near when you need anything. Miss you all!
ReplyDeleteMax..Alex..Ellee..Kristi and Matt..
ReplyDeleteWe think of you everyday.. we were so happy to hear the GOOD news..
Love
Bob and Carolynn
We are so happy to hear the good news, and continue to think of all of you everyday.
ReplyDeletehugs and kisses
give them all a big hug for me!
Great News about Max!
ReplyDeleteWe sat with Matt, Alex and Will at the Xavier Game Saturday. Alex is a real fan.
We thought it was funny the way Alex stood and cheered the whole game and guarded Max's seat awaiting his return.
We will keep you all in our prayers.
Love,
Bill and Jo Ann
Hello to Max, Alex, Ellee and Matt & Kristi...
ReplyDeleteLots of love and good wishes to all of you.
We know that Jesus loves and protects his little children....so He will surely continue to take good care of you and your family. Hugs and kisses to you all.
PS...I had to close my eyes when I watched the YouTube skateboarders...yikes, they are brave..just like you, Max.
Love,
Aunt Betsy
Hi Meyer Family!
ReplyDeleteI am so glad to hear about your good news! I will be thinking of you all in these upcoming months! Best of luck and take care!
Annie McNerney Tate
I love the blog page and all the pictures. Wow Max you are quite a celebrity. Know that you are all in our daily thoughts and prayers. Stay strong and know that God will help you through each day. All our love, Kris, Charlie, Ben, Alex and Elliott.
ReplyDeleteHey guys... great news! We will be in town the last weekend in March and hope to be healthy enough to visit Maxer...Give everyone big hugs for staying strong !! take care!
ReplyDeleteArnie, Tonya & Gavin
Hi Meyer family!
ReplyDeleteWe are all praying anf thinking of you all each day and hope you stay strong through all this! You are in good hands at Children's and sounds like you have an entire school and community on your side !! What a special guy!!! Matt and Kristi - stay strong for each other and lean when you need too!!!
Take care !! Hugs !
The Hardewig Family
Gary , Libby, Abby and Brady