Sunday, April 19, 2009

"I'm going home...back to the place where I belong..."

We're packed up and ready to go tonight! Max is doing great and VERY excited about going home tomorrow! Alex is equally excited about seeing his big brother and even Ellee seems to know something is coming. She kept talking about "Maxi" and the "ho-pi-tal" (as she says it) this morning. We are now counting down the hours and planning a family celebration tomorrow night!

One of Max's doctors told me tonight that he is "a rockstar" and his PCA said that it's the quickest that she has ever seen someone released after transplant! We are extremely thankful that Max has done so well so far and that we are getting to go home and be all together!

We will probably be back down here for most of the day on Tuesday and/or Wednesday at the Clinic/Day Hospital as Max will need some infusions of medications that only they can give him down here. I'm sure we'll probably be back on Thursday or Friday too (or possibly both) for monitoring, etc. I'll get the initial schedule of appointments tomorrow and will know more at that point when we will be here and for how long each week, etc. But, at least we'll be sleeping in our own beds and spending A LOT more time at home together!

As we've told you on the blog, Max's favorite singer with whom he shares a birthday is Chris Daughtry. His favorite song by Daughtry is "Home" and it is extremely fitting for tomorrow's occasion. We will be listening to it on the way home and plan to jam out all together to it also once we get home. It's been Max's plan since before we were admitted here.

There is a fabulous music therapist down here at Children's that has visited Max several times and made a recording of him singing "Home" with Daughtry. I've tried to attach it for you all to enjoy and to play tomorrow in honor of Maxer's homecoming, but I can't get it to work. Maybe it will work once we are home tomorrow. He did a great job singing it...knew all the words! Maybe he'll be a singer some day!

The next few weeks will be another big adjustment for us again but, a much better one, being that we will be re-adjusting to being at home all together again. We will continue to update you all regularly, I promise. Hopefully we'll get a lot more of Alex and Ellee on here too!

Thanks, again for all your support, love and prayers! As Daughtry would say..."these places and these faces are getting old....I'm going home!"

Kristi (and Matt, Max, Alex and Ellee)


  1. Hey Kristi,
    Great great news! We were at Kroger tonight and saw a little boy from Lilianne and Alex's preschool class. We got home tonight, and she mentioned that she misses Alex at school - kind of out of the blue. So please be sure to pass on a big HELLO! from Lilianne at school to Alex and tell him he is missed! Hopefully they will be in class together again next fall. Lilianne is in the 3 day morning class.

    I can't wait to hear about Max going home! That will be AWESOME!

    My best,

  2. There is no place like home!!!

  3. I am so happy for you guys to be going home!! And the best part that Max is feeling so good! That is truly a blessing...have a wonderful day!

  4. So glad you get to go home. Rylie misses Alex, too!

  5. Tom and I want to let you know that we have been reading the blog daily and we are thrilled to hear about the move home and about Max's great results! This makes our day! Love, Wynne and Tom

  6. How exciting! We are so thrilled about this wonderful news.
    God is great indeed!
    Love, Mary Beth, John, Megan, and Blake

  7. yes, there is no place like home and your own bed. GOOD JOB Max ! You are well on your way to bigger & better adventures in your life. Hope to see you soon.

    Your Friend, Maureen

  8. YEAH!!! So happy to hear Max is coming home!!!
    We have been praying for all of you and so happy things are going well :) Kim keeps me posted daily as well which is awesome.
    Take care,
    Meredith, Clint, Kyle, Regan and Parker

  9. Happy homecoming! Mrs. Newton and I miss Alex at school too!

    Lynn Rothfuss

  10. Max...
    Welcome HOME....I drove by the house today...what a welcome with all the signs & know how to EXCITE the crowd...Enjoy your first night home...
    Bob & Carolynn

  11. Way to go Max!!! the Ohio Bohl's

    Brett, Joyce, Brady and Taylor!

  12. What remarkable news! FANTASTIC!!! I hope that the transition to home is easy, and you get good support from the hospital. I hope that you can slip into an easy management of all the medications and procedures that I'm sure have to go on at home! What a blessing to be all together! Max certainly is a rock star- as are you all! Go Meyers!


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