But, at 17 months old, she has already done something that few people will ever accomplish in their entire lives...she has begun the process of saving someone's life...her own big brothers! Max got the bone marrow infusion from Ellee at about noon yesterday and it was finished at about 3:30 (if you look closely in the picture of him, you can actually see the line with the marrow in it hooked up to his central line and going into his body). He felt amazingly good afterwards and was up playing games and eating! Unfortunately, he is not feeling as well today but, that is definitely expected at this point. He will likely have many ups and downs over the next few weeks as his body adjusts and Ellee's marrow begins to engraft. He has also been battling high blood pressure for the last few days as well as nausea so both of those are contributing to his yucky feeling.
Watching the actual infusion of the bone marrow was definitely a sacred moment for Matt and I, as well as our Pastor...the gift of life in the truest sense! We can only hope and pray that things continue to go as well as they have for Max so far and that within a few weeks we will be headed home with him and on the road to recovery!
Max continues to be strong and patient, though he does have his moments as the cumulative effect of all of this adds up on him. Matt and I are emotionally and physically drained but remain faithful, hopeful, thankful and strong.
We can't tell you what it means that we have so many people pulling for us in this situation! Your thoughts and prayers mean the world to us. It really helps us get through the tough moments...and there have been plenty of those.
We'll keep you posted as things progress over the next few days and weeks. Pray for the best outcome possible!
Kristi (and Matt, Max, Alex and Ellee)