It's all catching up with little Maxer today. For the first time in a long time (maybe his whole life just about) he has spent the afternoon in bed and is actually sleeping right now! He had his first dose of the last round of chemotherapy this morning and it has really pushed his body over the edge. He's exhausted. This is very much expected at this point and it will probably be the case for the next few weeks, if not the next several weeks. We are definitely in the "heat" of this journey and it is getting intense.Max's spirits are good and his body is doing what it is supposed to be doing so, we just have to hang on and get through this. We are in what the doctor's call day -8, with the transplant day (April 1st) being day 0. The next 3 weeks will be the most intense and probably most difficult part of this journey for all of us. So, please keep your prayers coming for Max and the rest of us. We appreciate them!
I am keeping busy during this quiet time by writing thank you notes to express our gratitude for all the things that you all have done for us. It's been quite amazing and overwhelming and we want you all to know how much it has meant to all of us!
Alex and Ellee are hanging in there at home. They have been enjoying the nice weather in Cincinnati whenever possible.
There was an editorial article in the Cincinnati Enquirer yesterday written by Krista Ramsey about a little girl with aplastic anemia who had a bone marrow transplant here at Children's Hospital when she was 7 years old, just like Max. She is now 20 and is fully recovered and doing very well...studying in France! We were extremely inspired by this and have our sights set on the exact same thing for our little Max in the future. He probably won't end up in France (at least it doesn't appear that way at this point) but, I'm sure we'll find him 13 years from now touring with the Extreme Sports gang or, as he would like it, in the NBA! :)
Take care, love each other and we'll send more news soon.
Love,
Kristi (and Matt, Max, Alex and Ellee)
Kristi, Matt, Alex ,Ellee & Max...
ReplyDeleteWe think of all of you everyday...May God Bless you ..keeping you safe & strong.
Love
Carolynn & Bob
We are counting the days with you Max, Kristi, Matt, Alex and Elle. It is good to know everything is going as planned. Our thoughts are with you every day. - Amanda
ReplyDeleteMy son Morgan (Max's classmate's older brother) read your entry on my phone this evening. It was important enough to him to get through entry by himself. All of you are doing good stuff. T-minus 8 days. Got it. Godspeed on this continued family journey.
ReplyDeleteKristi, Matt, Max, Elle and Alex,
ReplyDeleteEveryone is praying for all of you. Know that he will give you strength to get through this. We're here if you need anything.
Love ya
Becky
Kristi and Matt,
ReplyDeleteWe have you all in our prayers EVERY DAY. We are optimistic that Max will someday make it to France or wherever his heart desires. Karen and Norb M
Hi Max I am Lauren you do not know me but I am in Mrs. Sherwin's class. She never stops talking about you. I also have sent you 2 cards one had a rainbow and the other one on the back has you skateboarding. :)
ReplyDeleteLove,
Lauren
P.S hope you feel better soon!