This is Aunt Sarah writing for Kristi. She wanted to do an update before they left for Disney, but several events yesterday prohibited her from do so. But we have great news to share!
First, the Meyer's are at Disney! Thanks to the Make-A-Wish Foundation and a local family who helped grant Max's wish, they are hanging with Mickey all week! They are all extremely excited to see Disney and do normal family things together! They woke up at 4:30 this morning, but to their delight, they were picked up by a limo and taken to the airport! Hopefully, we'll have updates as soon as they get back.
Second, after being up all night Thursday with Max getting sick, Kristi and Max headed to the day hospital for their regular treatment, not sure what Dr. Davies would say about Disney since Max was sick. Much to their delight, she said all systems were a go! Max got several IVs of fluids and his IVIG treatment so he is all set. Dr. Davies gave them more great news yesterday! Essentially Max is at a point where he is being minimally immune suppressed with the Cyclosporine (they are doing this so that Ellee's cells will win the fight against his) so, immune-wise, he is similar to a child that has had an organ transplant. Organ transplant recipients are on Cyclosporine for some time, sometimes the rest of their lives at a dose similar to Max's and function largely as normal children. Great news! He can pretty much do everything with cautions (handwashing, wiping down surfaces, etc.) other than swim in a public pool. Great news! Other than hanging out at the swim club, it looks like this summer will be pretty close to normal!
Thirdly, we wanted to share a website with you and invite you to take the max365 challenge! Ryan and I put together this site, www.max365.org, to celebrate Max's 365 day post-transplant. Our goal is to get 365 pledges to help give others a positive outcome from severe aplastic anemia and other blood diseases. Pledge to either give blood, register for the National Bone Marrow Registry, volunteer at CCHMC or the Ronald McDonald house or donate to Dr. Davies research, Make-A-Wish or Max's meals! By choosing to pledge something, you can help others like Max have a positive outcome. There are so many ways to help make a difference so thanks to all of you that have helped over this past year and thanks in advance to those of you who choose to help now too! We appreciate it so much!
Also, check out this great article about Max's Meals and the blood and bone marrow registry drive Kristi and Aunt Monica are having!
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