1. We were extremely blessed to have a sibling bone marrow match and did the best possible thing for Max's future by going forward with the bone marrow transplant from Ellee, especially as quickly as we did.
2. Although Max did have the best case scenario for treatment of his disease and we are certain that this bone marrow transplant will ultimately be successful, this experience has changed him forever and we will forever be monitoring his health and keeping an extra close eye on him (ie worrying about his health) as a result.
3. Max's diagnosis is Aplastic Anemia but, now that he has had a bone marrow transplant, the support and information provided by AAMDSIF is no longer what we need. We now can find more useful information and support through the National Bone Marrow Registry's Patient Advocacy group. I had a great talk with a woman at the conference from this group and found them to be extremely helpful and brought home a ton of educational material already.
As you can see, we had another wonderful weekend. We also got great news last Friday at our weekly Day Hospital visit. Max is doing well enough that we no longer have to go down to the hospital on Tuesdays...only once a week visits on Fridays! We were thrilled and a bit shocked all at once! We were grateful to have today "off" and enjoyed spending some time with my sister and Audrey this morning instead of sitting in the clinic room at the hospital!
Things are continuing to progress for Max and all of us. We know that we still have quite a road ahead as Max will continue to be under close medical supervision for an entire year post his transplant and will still experience many restrictions, etc. However, when we realize how far we have come already, we know that a year from now, we will be enjoying life as a family again and looking back in astonishment at how much things have changed, once again, within such a relatively short amount of time. As always, thank you so much for your continued thoughts, prayers and support.
Peace and love,
Kristi (and Matt, Max, Alex and Ellee)